Medicina Personalizada de Base Genómica: Boas Práticas, Ética e Direito

Overview & Synopsis

This Manual of Good Practices is intended to be an ethical and legal guide, based on national and international legislation and ethical documents that address the topics covered, aimed at healthcare professionals. Advances in genomic-based Personalized/Precision Medicine (PPM) are developing at such a dizzying pace that, in certain respects, the legal system is not evolving at the same pace. As a result, many of the challenges arising from this new model of medicine and healthcare provision do not find sufficiently clear answers at the regulatory level. Starting from the recognition of this gap, the aim is, in addition to presenting the possible solutions already clarified in the legal system, to bring to mind the many other ethical and legal challenges offered by the MPP in the field of genetics.