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Showing 9 of 9 academic articles

Institutional and Social Issues Surrounding Genetic Counselors in Japan: Current Challenges and Implications for the Global Community

Yayoi Aizawa, Atsushi Watanabe, Atsushi Watanabe, Kazuto Kato • Frontiers in Genetics (2021)

In recent years, genetic counseling has started playing a major role in the field of genomic medicine. There are currently about 7,000 genetic counselors in more than 28 countries, with 267 certified genetic counselors in Japan alone (about...

DOAJ Open Access (DOAJ) DOI: 10.3389/fgene.2021.646177

CuddleCard: Protocol for a randomized controlled trial evaluating the effect of providing financial support to low-income mothers of preterm infants on parental caregiving in the neonatal intensive care unit (NICU)

Margaret McConnell, Alya Alsager, Plyce Fuchu, Shrivaths Sriprasad et al. • BMC Pediatrics (2025)

Abstract Background Preterm birth is a leading cause of childhood mortality and developmental disabilities, with persistent socioeconomic disparities in incidence and outcomes. Maternal presence during prolonged neonatal intensive care unit...

DOAJ Open Access (DOAJ) DOI: 10.1186/s12887-025-05621-9

Ethical and social implications of approaching death prediction in humans - when the biology of ageing meets existential issues

Marie Gaille, Marco Araneda, Clément Dubost, Clémence Guillermain et al. • BMC Medical Ethics (2020)

Abstract Background The discovery of biomarkers of ageing has led to the development of predictors of impending natural death and has paved the way for personalised estimation of the risk of death in the general population. This study inten...

DOAJ Open Access (DOAJ) DOI: 10.1186/s12910-020-00502-5

What motivates SARS-CoV-2 vaccine trial participants? A pre- and post-participation survey study

Olivia A. C. Lamers, Meta Roestenberg, Martine C. de Vries, Marie-Astrid Hoogerwerf • Trials (2024)

Abstract Background Scientific advancement, including the testing and licensing of new drugs, relies heavily on clinical trials with healthy individuals. The motivations of clinical trial participants have been discussed intensively, as som...

DOAJ Open Access (DOAJ) DOI: 10.1186/s13063-024-08582-z

Secondary research use of personal medical data: patient attitudes towards data donation

Gesine Richter, Christoph Borzikowsky, Bimba Franziska Hoyer, Matthias Laudes et al. • BMC Medical Ethics (2021)

Abstract Background The SARS-CoV-2 pandemic has highlighted once more the great need for comprehensive access to, and uncomplicated use of, pre-existing patient data for medical research. Enabling secondary research-use of patient-data is a...

DOAJ Open Access (DOAJ) DOI: 10.1186/s12910-021-00728-x

Cybersecurity in Health Care

Karsten Weber, Nadine Kleine • The International library of ethics, law and technology (2020)

Abstract Ethical questions have always been crucial in health care; the rapid dissemination of ICT makes some of those questions even more pressing and also raises new ones. One of these new questions is cybersecurity in relation to ethics ...

OPENALEX cc-by DOI: https://doi.org/10.1007/978-3-030-29053-5_7